We survived another hospital trip. It is hard to believe that we have been dealing with Shwachman-Diamond Syndrome for 25 years now. Some years the boys have had 2-3 bone marrow biopsies with quite a few other surgeries, while other years only one. The doctor performing the biopsy this year decided not to use the iliac crest (back of the…
Category: Hospital
To Live is the Rarest Thing in the World
Not all of my adventures happen on a bicycle or in a kayak. My middle son turned 25 this year and while it may not seem like a big deal to most people, it’s kind of a big deal to me. When he was a baby, he was sick a lot. At one point they thought he had leukemia and…
My Little Red Bike 