Tour de Cincinnati

25 years of BMBs

We survived another hospital trip. It is hard to believe that we have been dealing with Shwachman-Diamond Syndrome for 25 years now. Some years the boys have had 2-3 bone marrow biopsies with quite a few other surgeries, while other years only one. The doctor performing the biopsy this year decided not to use the iliac crest (back of the hip). It’s the only place my boys have have had their bone marrow biopsies and aspirations since this journey began 25 years ago. Until yesterday, that is. The physician said that built up scar tissue from so many previous biopsies can make it hard to get a sample, so he wanted to use the anterior crest (front) instead. Everything went well, now we just wait for the results.

After we returned to the Airbnb apartment we rented for the trip, we ordered our traditional after biopsy pizza from Dewey’s. If you ever go to Cincy and you haven’t tried Dewy’s, give it a whirl. You’ll be glad that you did. A friend from Indiana came to visit and we ended up going to look for bicycles. We made it to 5 different cycle shops in just over 4 hours. I was looking for Bianchi bikes and she was looking for e-bikes that she and her husband can ride. We had a great time on our Tour de Cincinnati!

It is a lot different going to the hospital with adult children than it is with the littles. Life has really changed for me in 25 years! Now, after long day at the hospital, I can meet up with old friends and work on fulfilling some of my big dreams. We looked at all sorts of e-bikes and went to 5 different cycle shops. At the end of the day, Jim’s Bicycle Shop was voted most friendly and helpful — he even gives a 5% discount for cash— and we feel like the Gazelle e-bikes were the best e-bikes for the money. They simply ride well and have more bells and whistles included. I didn’t find the Bianchi I was looking for, but did see this really cool Bianchi e-road bike….. I might be able to keep up with Marty if I got one of those! <giggle> I think it is going to be hard to find my dream bike, but I won’t give up, y’all!

This is a short entry tonight as I am in what I call, “stress hangover” mode. The stress hangover is nothing like it used to be when they were little, but it is still there. Of course, the Tour de Cincinnati really helped take away some stress hangover. What better way to get rid of stress than to catch up with good friends!? You know the kind of friends you just pick up where you left off and it doesn’t seem like any time has really passed? Life is even better with friends. I am blessed. I’m not sure what tomorrow will bring, but I do know that whatever God has in store, it will be beautiful!

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